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Irish joined the group Bladder Cancer Advocate Network
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rahulkamra joined the group Bladder Cancer Advocate Network
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Love Life Lupus Foundation Inc. joined the group Bladder Cancer Advocate Network
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Daniel Christian Patient Advocate joined the group Bladder Cancer Advocate Network
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Valentina joined the group Bladder Cancer Advocate Network
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Anna Baccaro posted an update in the group Bladder Cancer Advocate Network
My brother was recently diagnosed with metastatic cancer of urethal origin stage 4 that has spread to the liver. Does anybody know of any promising treatments besides standard chemotheraphy? He is too weak to travel very far now. We live in the Dallas Metroplex area
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Hello Anna, i am so sorry to hear about your brother! It sounds like he needs to focus on less toxic treatments such as immune therapies, kinase inhibitors, and only the least invasive and most targeted treatments! As I recommended below, our advocates are standing by to help you find and evaluate your treatment options. I very much recommend that you fill out the short request form for a free cancer treatment consultation, starting on this page https://weheal.org/thank-special-offer/
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Thank you Eric, I have filled a request for a consultation earlier today,
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Great did you hear back from the advocate? I am happy to help you sort through the information and ask questions etc. You are welcome to include me in the conversation as many patients do, by copying my email at eric@weheal.org. I am happy to help in any way I can!
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Anna Baccaro joined the group Bladder Cancer Advocate Network
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Irish posted an update in the group Bladder Cancer Advocate Network
Hi Eric,
We are currently working with the University of Washington. Dr. Evan Yu is the oncologist and Dr. Jonathan Wright is the urologist/surgeon. It is the local Evergreen Hospital Dr who wants to do more chemo and we have not heard back from him on what he decided after consulting with the UW docs. Of course ultimately it is our decision.-
It si ultimately your decision, but we have advocates standing by who can walk you through those decisions and give you all the treatment info and data you need to make that decision! Please do request the free consult through the form on the home page.. Its free and can only help you make your decisions!
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Irish posted an update in the group Bladder Cancer Advocate Network
My husband has stage 2B, high grade, urothelial muscle invasive bladder cancer with possible lymph node involvement and also carcinoma in situ. We have been told that cisplatin based chemo followed by surgery to remove his bladder, prostate, and seminal vesicals is basically the best and possibly only way to save his life. We have been through 2 of the 4 prescribed rounds of chemo and after a CT Scan, showing the questionable lymph node shrinking from 8mm to 4mm, our oncologist suggested that we add 2 more rounds, (6 weeks) of chemo at the end of the 4 rounds that we are currently 1/2 way through. We are concerned about the possible severe side effects (complete hearing loss and kidney damage) that could occur by adding even more chemo before surgery. We already had a surgery date which will now have to be delayed if we add 6 more weeks. The Dr. didn’t really explain why he was thinking of adding 2 more rounds and said he would get back to us after consulting with other doctors. Does anyone in this forum have any ideas or suggestions to clarify this? I plan on sending a message to an Oncologist. at the University who is overseeing my husband’s treatment at a local hospital.
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Hello Jake and Irish, I am so sorry to hear about what you have been going through! I highly recommend requesting the free cancer treatment consultation which you can do on our WeHeal home page if you have not done so already. An advocate at Cancer Commons will contact you within a couple days of receiving your information, and he / she can walk you through your treatment options. Unfortunately you may have to travel away from your local hospital to get the most advanced treatments available, but first lets find out what your options are. As a patient advocate who has been through this, I am happy to talk with you and your husband directly and help you weigh your options. Please let me know if you are interested and i will email you privately. BTW which University are you currently working with?
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Please also review articles below regarding the most advanced Immune Therapies as well as Kinase Inhibitors that are being used.
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Irish joined the group Bladder Cancer Advocate Network
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Eric Drew posted an update in the group Bladder Cancer Advocate Network
Jeff and other bladder cancer patients. I know this is my 7th post of the day here, but this information is critical. This article is very technical, but if you look up the definitions of any words that you don’t understand, this will all make sense and start to for a clear picture of what you want for yourself. AS expected, traditional toxic chemotherapy do not have a good long term result! A combination of immune therapy and kinase inhibitor therapy may be a strong option!
New Agents for the Treatment of Advanced Bladder Cancer | Cancer NetworkThis article will review select novel targets and approaches relevant to urothelial cancer.
