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Judy joined the group
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Frankschulz777@Gmail.com joined the group
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Hi Winnie!
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Dr.T posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
My Cousin was just Diagnosed with GBM and has had one brain surgery, and she is on a chemo and Radiation course right now. She has been to Mayo Clinic once and lives in Minnesota. Does anyone know any good oncologists in that area that could be recommended to her?
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Hello Dr. T, your timing is perfect! Right now WeHeal is arranging free treatment and trial consultations for cancer patients (especially GBM) with a team of nurse advocates, and that’s exactly the information they specialize in. ( They will research and let you know what trials are being done and who are the top oncologists / researchers in her…[Read more]
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Taken form the consult posted below, has your cousin had testing for MGMT promoter methylation? The MGMT status guides how and when to have the chemo temozolomide. (frequently called TMZ). Also she should probably have broad genomic testing using a test like Foundation One, if that is possible. These tests may identify specific mutations or…[Read more]
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Eric Drew posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
URGENT! This post has crucial info for anyone newly diagnosed with GBM! This is the result of the treatment consult arranged for a patient in June 2017, and it talks about what tests to have done which will guide what treatments will be effective or not and list GBM experts on the west coast of the US.
I’m sorry to hear of your recent GBM d…[Read more]
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Eric Drew posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
Francesca did you see the 60 Minutes episode tonight about Glioblastoma? So exciting for all cancers! http://www.cbs.com/shows/60_minutes/
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Francesca posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
Latest info – we flew to Newport Beach, CA to see Dr. Christopher Duma, who agreed to use his GammaKnife as a one time radiation treatment for Tom’s tumor. When we got there, Dr. Duma told us that the tumor had grown larger, to the point where he could NOT use the GammaKnife. He had a nearby colleague, Dr. Amanda Schwer, who had a CyberKnife, and…[Read more]
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Francesca posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
What’s new with us is after the surgery at Stanford to remove some of the tumor, we returned to Hawaii for a Gamma Knife radiation. When we arrived at the consultation with the surgeon, we were informed that he had taken a leave of absence, and they had imported a new radiation oncologist from Canada. Needless to say, she was NOT interested in…[Read more]
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Eric Drew posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
My father’s business partner and friend Tom has been recently diagnosed with Glioblastoma Multiforme, and of course I offered to meet with them and assist his wife Francesca with evaluating next steps and treatment options. Tom and Francesca live in Hawaii where they had the initial tumor extraction surgery which is generally the first step in…[Read more]
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