Activity
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
New drug raising breast cancer survival rates http://www.bbc.com/news/health-36459682
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
If this were a pill, it would be a no-brainer.
Less pain. Emotional stability. Nutritional guidance.
It’s the things a cancer patient needs when coping with the side effects of cancer treatment, helping them “get through today.”
While it’s not a pill, there is a type of medical care that’s been proven to help cancer patients and survivors cope with treatment’s side effects, improving their quality of life.
Unfortunately, not enough doctors are trained to provide it and too many hospitals don’t offer it.
Our new legislation in the U.S. Senate will change that, but one of your Senators still hasn’t agreed to support it.
We can make life better for cancer patients and survivors.
https://secure3.convio.net/acscan/site/Advocacy?cmd=display&page=UserAction&id=12966
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Newly diagnosed and wanting to hear more about what Mastecomy surgery is really like?
http://www.prevention.com/health/what-its-like-to-get-a-mastectomy
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
For anyone that experienced permanent hair loss from the chemo drug taxotere.
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
A very cool program for women at any stage of their diagnosis.
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Hi Everyone My name is Cindy and I will be the moderator for this group. I was diagnosed April 2011 at the age of 41 with stage 2B invasive lobular carcinoma. In the last five years I’ve been very involved with being “cancer buddies” to many newly diagnosed women as they start their path of treatment. One of which was my own mother 2 years ago. I also participate in the 2 day Avon39 walk each year. It’s my way of letting cancer know it didn’t win!
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challabaker joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Very informative challabaker. This is perfect for people newly diagnosed and their head is spinning.
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Gracie007 joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Valerie Gold posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
THE VALERIE GOLD STORY Her Battle with er+ pr+ her2 Breast Cancer Written by Val Gold with Eric Drew
My name is Val Gold and I am a 54 yearold healthy woman, and I have been successfully battling breast cancer for 14 years (as I write this now). I was first diagnosed with “er+ pr+ her2 Infiltrating Ductal Carcinoma” in January of 2002 at Kaiser hospital in Santa Teresa San Jose CA. Needless to say I was terrified! I could hardly pronounce this diagnosis, and definitely did not know anything about it. I sure wasn’t qualified to start making life and death decisions about what treatments to do. It was clear, however, that the opinions I was getting from the doctors were conflicting with my own intuition as to how to treat this disease.
I was told I needed to have massive surgery within one week (they recommended a mastectomy), or have a lumpectomy to remove most of the tumor then six weeks of intense radiation. They said maybe if I did the full mastectomy right away, I may not need the radiation part, However, if the tumor came back I would need the a mastectomy anyway. Either way they said I would need six months of heavy chemo afterwards just to be sure,
It felt like they were pressuring these horrible treatments on me, and it didn’t feel right at all! I looked into the side effects of these procedures, and all of them were going to be very traumatic! In the case of radiation and chemo, these were going to make me very sick! I was a healthy athletic person and it didn’t make sense to make my whole body sick to fight a tumor in my breast.
After many severe warnings from the doctors and after all the tests and needle biopsies, I agreed to have a limited initial surgery to extract as much of the tumor as possible, and agreed to have the lumpectomy. However, after the first surgery they said they could not get “a clear margin on the tumor” and needed to go back in, and this time they wanted to take out 20 lymph nodes in a “full lymph node dissection”, but I couldn’t imagine traumatizing my body that much without even knowing if these lymph nodes were cancerous, so I only agreed to let them take the first lymph node in line next to the tumor which they referred to as the “Sentinel Node”. This lymph node was cancerous, so they again pushed me to do a “full lymph node dissection”, and again this was counterintuitive. Why take out all these lymph nodes if they are not cancerous. We agreed on a compromise and 8 more lymph nodes were taken out, but all of these were unaffected and no cancer had spread to these.
It was now only three weeks after my diagnosis and I had already had three surgeries and the damaging side effects were already rearing. I developed a massive infection in my armpit which had to be packed with gauze daily for 30 days, and every one of those day they were pressuring me again and again to start radiation and chemo immediately, both of which I felt very
uncomfortable about. I just wasn’t seeing the benefits overcoming the risks and I didn’t feel right about making my whole body sick when my only problem was in my breast.
To try and find a different opinion I visited Oncologists in Los Gatos, Ca, Stanford Hospital and U.S.C. in LA. Dr James Wiseman who was then Suzanne Somers Oncologist and head of Oncology at U.S.C. had the very bold and condescending opinion that if I did not do the Chemotherapy I would would be dead in four years. These second opinions cost a fortune as they were all outside of Kaiser and all a waste of time and money.
I read about the side effects of all these treatments and began to network with other women who told me about their experiences with these treatments and how sick it made them! Lost eyesight, heart problems, nausea and vomiting, finger and toenails went black and fell out, and many ended up a few years later with other cancers like leukemia and had died. I was also told I needed to take Tamoxifen, which can cause early menopause, cervical cancer, blood clots, stroke, hair loss, and cataracts. Forget that! No way! They began giving women Tamoxifen in the 1960’s, and they still had not come up with anything better? I could not get beyond the side effects and chose not to take it
After being bullied by numerous doctors, I did finally agree to have 6 weeks of radiation which I now regret, as I feel it did more damage than good. The only place I have the tumors now is where I did the radiation, and I am convinced it is because of the radiation. I also have necrotic (dead) tissue in this area which has caused edema and other issues. In parallel with these treatments, however, I began my search for more natural and less invasive treatments.
I followed the writings and story of Suzanne Sommers who had done so much research on more natural ways to fight breast cancer, and the first thing I realized I needed to change was my diet. I followed a microbiotic diet, making sure I ate only organic products. I had previously thought I had a healthy diet, but I realize now I ate too much red meat and dairy. These were quick to go along with wheat flour and sugar, which cancer loves and feeds on.
I purchased a Juniper Water Ionizer along with a very complex water filtration system for the kitchen, as I had researched that cancer loves and acidic environment and hates an alkaline one. Changing the alkalinity in my body by drinking alkaline water would make it harder for the cancer to survive.
I did injectable mistletoe, vitamin C infusions, and another natural supplement which was injected into the lymph nodes called 714X. For several years I was stable with no sign of disease, until a tumor appeared under my arm in 2006 (where I had the radiation) and I had it removed with a small surgery. In 2007 I went to Germany and did one of the first Immunotherapies ever offered, and it seemed to work very well. The Dr. who ran the clinic was Dr. Kubler at the LaborPraxisklinik in Munich. ( http://www.laborpraxisklinik.de ) Since then I have been diligent with an anticancer diet and I have taken many anticancer supplements. I have been doing very well for many years but the cancer is back, and I am now
raising money to do another immune therapy in Santa Barbara that I feel very positive about! Please support me in getting this treatment on GoFundMe page called “Valerie Gold Stage 4 Cancer”.
If I could go back in time 14 years to my diagnosis, and give myself advice, I would say “Slow down! You are not going to die tomorrow so don’t rush into invasive and potentially damaging treatments and surgeries. “Cut that, chop things off, radiate everything, and poison your body with carcinogenic cancer causing substances”. This just doesn’t make sense, even now! I want to attack the cancer cells in my body, and help my body fight this cancer, not kill all the healthy normal cells!
I have known tens of other women who followed the medical advice to a tee and did everything that was recommended, and many of them have died. Many others who did survive have severe permanent disabling problems.
Even though I have refused much of the recommended treatments and have never done chemo, I seem to be doing much better than most of the women who went the traditional route. I have lived a good quality of life these past 14 years, and am very optimistic that I will one day be cured without permanently damaging my body to do so.
Please keep in touch with me and share the things you have learned in the WeHeal Community for er+ pr+her2 breast cancer. I know that by helping each other and sharing our experiences, we will get through this together! https://weheal.org/groups/erprher2breastcancer/