Communities – Activity – Polly

Dentissimo joined the group

8Ting posted an update in the group Parkinson’s Disease Advocate Network

And Brain Support Network’s link is:

Brain Support Network | Brain donation to find a cure for neurological disorders; atypical parkinsonism support group; LBD/DLB, PSP, MSA, CBS/CBD

https://www.brainsupportnetwork.org

Brain donation to find a cure for neurological disorders; atypical parkinsonism support group; LBD/DLB,…

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Eric Drew replied

Thank you so much for posting this valuable information!

8Ting posted an update in the group Parkinson’s Disease Advocate Network

Parkinsonism is a generic descriptive term that refers to the whole category of neurological diseases that causes slowness of movement. The category includes the classic Parkinson’s disease, many atypical variants, sometimes called “Parkinson’s Plus Syndromes”. The following are two links for care and support. CareXc has a parkinson’s in-home car…[Read more]

8Ting joined the group

8Ting joined the group Parkinson’s Disease Advocate Network

Polly posted an update in the group Parkinson’s Disease Advocate Network

Hello everyone in the Parkinson’s Disease Community. I am brand new here. My husband and I live in Aptos, CA and he was diagnosed with Parkinson’s in 2015. I would love to know about any of the most current resources available and am excited to have found this site and all of you! Thank you Eric Drew for taking your struggles and creating…[Read more]

8Ting replied

So happy to see you found and joined this site. I have been a caregiver for my sister who suffered atypical Parkinsons. So I know a few things that a family caregiver might want to consider. I will post some in a separate comment area. The key thing I want to suggest is that you have to make sure you take care of yourself as well because…[Read more]
Eric Drew replied

Thank you both and thank you Polly for your kind words, and for posting such valuable content! We do have a new free service called Aloha Health treatment search, which is essentially a very customized search for the most advanced treatments and clinical trials available. I would be hay to facilitate this for you and your husband if you want to…[Read more]