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Eric Drew posted an update in the group Scleroderma Advocate Network
Hello Trinh, the following posts may be valuable for your doctor in Vietnam. Can you ask him to join us here in this community so he will have access to the information posted here? The medication “Prozosin” listed below is one of many we are looking at. It has modest benefit but can cause serious side effects. We will post information on others as well for your doctor to consider.
Prazosin for Raynaud's phenomenon in progressive systemic sclerosis – National Library of Medicine – PubMed HealthScleroderma is a connective tissue disease causing fibrosis and commonly affects the skin and internal organs such as the GI tract, lungs, kidney and heart. Most people with scleroderma also have raynaud’s phenomenon (RP). RP is defined as vasospasm of arteries or arterioles causing pallor and at least one other colour change upon reperfusion such as cyanosis or redness. Primary RP occurs in the absence of causes such as connective tissue disease. Secondary RP occurs in people with underlying diseases that affect blood vessels especially scleroderma and lupus. The RP that occurs in scleroderma is often more severe in that there is not only vasospasm but also a fixed blood vessel deficit with intimal proliferation and therefore narrowing of the blood vessels. Raynaud’s phenomenon may also be accompanied by digital ulcers which are possibly secondary to ischemia. -
Eric Drew posted an update in the group Scleroderma Advocate Network
Scleroderma – Treatment – Mayo Clinichttp://www.mayoclinic.org/diseases-conditions/scleroderma/diagnosis-treatment/treatment/txc-20206070Find out why Mayo Clinic is the right place for your health care. Make an appointment.. -
Eric Drew posted an update in the group Scleroderma Advocate Network
Scleroderma – Treatment – Mayo Clinichttp://www.mayoclinic.org/diseases-conditions/scleroderma/diagnosis-treatment/treatment/txc-20206070Find out why Mayo Clinic is the right place for your health care. Make an appointment.. -
Eric Drew posted an update in the group Scleroderma Advocate Network
Limited scleroderma – Treatment – Mayo ClinicFind out why Mayo Clinic is the right place for your health care. Make an appointment.. -
Eric Drew posted an update in the group Scleroderma Advocate Network
Hello Trinh I found this link about self management of Scleroderma which I thought was valuable. Jackie can of course help translate this if you need her to. I am having conversations with several doctors and experts. I hope to have more information for you in the next couple of days.
Scleroderma – Self-management – Mayo ClinicFind out why Mayo Clinic is the right place for your health care. Make an appointment.. -
trinh nguyen joined the group Scleroderma Advocate Network
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Jackie replied
Hello Trinh I am here in this community with you. I can help translate all this information for you. Please confirm that you see this msg???-
Hi Chi Trinh !
Em đang ở đây trong cộng đồng này với chị ,em có thể giúp dịch tất cả thông tin này cho chị, Xin vui lòng cho em biết chị nhìn thấy msg ???
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Ericdrew18 joined the group Scleroderma Advocate Network
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Eric Drew joined the group Scleroderma Advocate Network
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Weheal Contributor created the group Scleroderma Advocate Network
