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Tom Haverly posted an update in the group Multiple Myeloma Advocate Network
One way to locate active researchers and experts in MM: the membership list of the International Myeloma Working Group (IMWG)– http://www.myelomabeacon.com/forum/international-myeloma-working-group-imwg-members-t3514.html
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Tom Haverly posted an update in the group Multiple Myeloma Advocate Network
A comprehensive MM website, maintained by a large MM patients/caregivers support organization: https://myeloma.org/Main.action
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Eric Drew posted an update in the group Multiple Myeloma Advocate Network
Welcome Tom! Great progress narrowing down a potential “cure” for your Multiple Myeloma with an autologous (using your own) stem cell transplant! So now the goal is to get you in remission so you are ready for the transplant. Lets look into your options with Kinase Inhibitors (which attack the metabolic process (reproduction process). I found thi…[Read more]
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Tom Haverly posted an update in the group Multiple Myeloma Advocate Network
An orientation to forms of treatment at different stages of MM: http://emedicine.medscape.com/article/2006866-overview
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Tom Haverly joined the group Multiple Myeloma Advocate Network
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Welcome Tom! I am so excited to see you here!
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Great progress narrowing down a potential “cure” for your Multiple Myeloma with an autologous (using your own) stem cell transplant! So now the goal is to get you in remission so you are ready for the transplant. Lets look into your options with Kinase Inhibitors (which attack the metabolic process (reproduction process). I found this abstract…[Read more]
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Eric Drew posted an update in the group The WeHeal Welcome Community
“YOU ARE NOT A VICTIM FOR SHARING YOUR STORY! YOU ARE A SURVIVOR SETTING THE WORLD ON FIRE WITH YOUR TRUTH, AND YOU NEVER KNOW WHO NEEDS YOUR LIGHT, WARMTH AND RAGING COURAGE” Alex Elle
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Eric Drew posted an update in the group The WeHeal Welcome Community
This is an amazing breakthrough for all cancers! Great job Duke! http://www.cbs.com/shows/60_minutes/
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Eric Drew posted an update in the group The WeHeal Welcome Community
A CASE STUDY WITH INFO FOR ALL CANCER PATIENTS – by Eric Drew
One of my morning patient calls today was with a young man fighting metastatic colon cancer. He has been through major surgery to extract over a foot of his colon and 45 lymph nodes in the immediate area. He is now examining his options for the next phase of treatment and wanted my h…[Read more] -
Eric Drew posted an update in the group The WeHeal Welcome Community
This guy was diagnosed with lung cancer, but the write up is about how bad this country is at servicing patients! Great read! Regardless of having great doctors and technology, with a failing system of delivering medical care mistakes are made and many fall through the holes! I was one of them in my opinion! Medical Care Excellent but the…[Read more]
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John I relate to those words so much its almost like I wrote them. I definitely feel that upon my diagnosis and for a year after, my providers were not honest with me and gave me treatments that they knew would cause me great harm but had not chance of curing my leukemia. Very unethical, and this was at one of the largest most well renowned…[Read more]
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Eric do you think that maybe the goal was to prolong your life long enough until there was a trial that would work?
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Thank you Gracie! I don’t think they gave it that much thought to be honest. They are under orders to offer specific treatments and not discuss alternatives, so they were always in crisis mode and didn’t have time to advocate for patients. If that was their goal they did not vocalize this to me. I guess the biggest issue I have was the lack of…[Read more]
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Ericdrew18 joined the group Multiple Myeloma Advocate Network
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Eric Drew joined the group The WeHeal Welcome Community
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Eric Drew joined the group Multiple Myeloma Advocate Network
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WeHeal created the group Multiple Myeloma Advocate Network