Activity
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Jeanette joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Eric Drew posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Valerie needs the oil Boswellia, sandalwood, grape seed and lavender extracts. Sometimes we add oregano. Topical. Then detox from heavy metals and antifungal and we use off label drugs too.
Dana
Prof Dr. Dana F. Flavin,
http://www.collmed.org-
What is done with these oils and extracts? How
Do they help? I have all of them because I make my own lotions so would love to know how I can use them to fight cancer.-
Here is the reply form DR Dana Flavin who practices integrative medicine in Germany and publishes many papers on her integrative approach to cancer.
Dear Eric, we recommend it as 3 drops of each in a carrier oil like the grapeseed oil. massage twwice a day where there is or was a tumor in the breast.
We want to finish our book on reversing cancers but the foundation needs to be able to hire an editor. We may see if we can do a fundraiser.
I have 40 years of research, studies and experience.
Best to you,
Dana
http://www.collmed.org-
Interesting. I’m going to have to try this and see if it helps with any of the phantom pains that many of us exhibit in the areas where our tumors removed.
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Yes worth a try and please feel free to ask questions to R Flavin directly! There is a community and info page for CollMed on WeHeal at https://weheal.org/collmed-org/
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
I feel duped. What the statistics really mean and something to consider now that the new standard protocol is taking Tamoxifen for 10 years.
http://www.opposingviews.com/i/health/conditions/cancer/tamoxifen-what-difference-does-it-really-make-
I am sorry Gracie! This is exactly why we so desperately need CrowdHealing! How do you feel duped? What were you told that wasnt true?
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My oncologist definitely played the statistics game by saying there is a 40+% greater survival rate with taking tamoxifen etc. but what that really means is only a 1-2% difference from those that don’t. I would have never taken it for the last five years and I’m definitely not taking it for another 5. When so much is being thrown at you in a short amount of time playing games with the numbers to get your patient to do what you want really pisses me off. And I’m one of those patients that researched and challenged my doctors and I was still fooled. I can’t even begin to list the things that drug has done to my body for the last 5 years.
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Leukemia risk higher in certain breast cancer chemotherapy treatments.
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Unfortunately many of the adult acute leukemia patients I was treated with when I was fighting ALL, were breast cancer “survivors” 5+ years in remission after chemotherapy for breast cancer. The data generally reflects that these women were “cured of breast cancer as they were in remission for 5 years, but then the treatment gave them acute leukemia which almost none of them survived. We can be doing much better for these patients. Valerie, who is also a member of this community, has been fighting this type of breast cancer for 15 years without a drop of chemo, which is miraculous!
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This really is upsetting. This was not told to me as one of the side effects. I have to go in for a check up because I’ve got swelling around my lymph nodes near my collar bone which is a symptom of leukemia. The protocol for breast cancer treatment really needs to be evaluated because they haven’t changed it in decades and clearly are keeping information from us.
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If we only knew how much information was kept form us it would make you sick. This is exactly why we have created WeHeal.org and the CrowdHealing movement! To create a central transparent conversation around all treatments for all diseases!
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Eric Drew posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Breast cancer: Study identifies a molecular mechanism of drug resistance in ER+ tumors – Medical News TodayStudy suggests that a mechanism of drug resistance in ER+ breast cancers could be changes to the estrogen receptor caused by two immune system molecules.-
Well this makes me question why they are extending the length of this treatment from 5 years to 10 if most of us will become resistant. And this may have just finalized my decision to stop hormone therapy at 5 years.
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Thank you Gracie for this post and comment! I agree that this makes no sense. Seems like they are extending this simply to collect data and learn more about the mechanisms, but what is in the best interest if the patients??
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Eric Drew posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Good news!
Ribociclib improves progression-free survival in advanced breast cancer – Medical News TodayThe addition of the CDK4/6 inhibitor ribociclib to letrozole therapy significantly improves progression-free survival in postmenopausal women with hormone receptor-positive advanced breast…-
Great news!
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
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This seems like great info Ruth but i am a little confused myself. Can you please put this into context for the patients? Like, Is this a treatment option for this type of breast cancer? Is this a first line treatment or a follow up consolidation? Where does this info fit into their treatment options.
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Drug already on market may block breast cancer in high risk women. http://www.cnn.com/2016/06/21/health/brca1-breast-cancer-drug/
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Gracie007 posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
Welcome!