Activity
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Eric Drew posted an update in the group Prostate Cancer Advocate Network
For those of you in this community who haven’t yet read the story posted by Primo1 below, it is a great summary of his experience with a happy end! We are now looking for interns to drive more value and discussion about the latest treatment options in this community. Perfect for medical, nursing and other health oriented students looking to build their networks and resumes!
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Reed joined the group Prostate Cancer Advocate Network
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Linda joined the group Prostate Cancer Advocate Network
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Eric Drew posted an update in the group Prostate Cancer Advocate Network
Marc this one is completed at Cedars Sinai in LA for experimental drug LY3022855. Maybe contact the docs there and see how it went. There is always contact info posted at the bottom of the trial listing. This one has a Eli Lilly phone number, but they may be able to connect you?
A Study of LY3022855 In Participants With Breast or Prostate Cancer – Full Text View – ClinicalTrials.govA Study of LY3022855 In Participants With Breast or Prostate Cancer – Full Text View. -
Eric Drew posted an update in the group Prostate Cancer Advocate Network
They may not be recruiting, but this drug may be promising!
Sipuleucel-T With or Without Radiation Therapy in Treating Patients With Hormone-Resistant Metastatic Prostate Cancer – Full Text View – ClinicalTrials.govSipuleucel-T With or Without Radiation Therapy in Treating Patients With Hormone-Resistant Metastatic Prostate Cancer – Full Text View.-
Marc Its at City of Hope in LA, where you should definitely get an appointment !
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Here is that drug again in a recruiting trial at Duke. https://clinicaltrials.gov/ct2/show/NCT02036918?term=metastasize+prostate+immune&rank=5
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Marc posted an update in the group Prostate Cancer Advocate Network
Thanks Eric but insurance just told me my zytiga would cost over $2k/mo co payment… and drs on vacation .., and already at NIH but probably will not qualify of the vac study you linked to due to my myasthenia gravis …. Not a happy day.
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Don’t lose hope my friend we will figure it all out! There is always a way. Who do you know with financial resources that could donate or underwrite these costs for you? Now is not the time to be too proud to ask for help! I recommend starting a GoFundMe or other crowdfunding page, and sending it out to everyone and asking them to share! You will be amazed what comes to you if you simply ask!
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Eric Drew posted an update in the group Prostate Cancer Advocate Network
Marc I am sorry to hear that your prostate cancer has metastasized to lymph nodes, but we will find a solution for you! Here is an interesting trial in Denmark but we will keep digging. There are clinical trial search tool on the info and resources page (link at top of community page)
Bcl-XL_42-CAF09b Vaccination for Patients With Prostate Cancer With Lymph Node Metastases – Full Text View – ClinicalTrials.govBcl-XL_42-CAF09b Vaccination for Patients With Prostate Cancer With Lymph Node Metastases – Full Text View. -
breenteam joined the group Prostate Cancer Advocate Network
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Huey7074 joined the group Prostate Cancer Advocate Network
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Kate joined the group Prostate Cancer Advocate Network
