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michaeldeauville posted an update in the group Metachromatic Leukodystrophy Advocate Network
For a great resource, visit mldfoundation.org.
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michaeldeauville posted an update in the group Wilson’s Disease Advocate Network
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Thank you Michael! This link would be a valuable resource to put on the WeHeal Wilson’s Disease info and resources page, (Link above)
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michaeldeauville posted an update in the group Families of Children with Birth Defects Advocate Network
Children’s Hospital of Philadelphia is an amazing institution and is here to help families of kids with birth defects. Reach out to them and share your story and find the support you need!
Link: http://www.chop.edu/pages/advocate-children-birth-defects#.V8y7R2DG5-U
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Looks like a great program! Sharing your story on WeHeal is a great way to elicit support form others. Use the “Profile Description” section of your WeHeal Profile to tell everyone about yourself and the challenges you face!
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michaeldeauville posted an update in the group Families of Children with Birth Defects Advocate Network
Attached is a great piece by the CDC on birth defects and how families can overcome the many challenges it faces. Give it a look!
http://www.cdc.gov/ncbddd/birthdefects/families-support.html
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This is great information Michael thank you! Lets get lots of people to join us here and get a discussion going about these important resources!
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michaeldeauville changed their profile picture
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michaeldeauville joined the group Families of Children with Birth Defects Advocate Network
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michaeldeauville joined the group Metachromatic Leukodystrophy Advocate Network
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michaeldeauville joined the group Bone Marrow Transplant Advocate Network
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michaeldeauville joined the group Wilson’s Disease Advocate Network
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michaeldeauville joined the group Encephalocele Advocate Network
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michaeldeauville and
Eric Drew are now friends -
michaeldeauville became a registered member
Thanks Michael! If you click on the link above to the WeHeal MLD info and resources page, you will see links of this foundation and many other resources. If there are any that you think we should add please let us know!!