Gracie007

What I would like to know is why patients aren’t given all the options to chose from. Why do we have to try “standard” therapy first and go through all the horrors of chemo and radiation and only then are we candidates for newer and better therapies.

It is also misdiagnosed in many women. A dear friend just passed away from IBC. She was misdiagnosed and 2 months were wasted while the cancer spread.

This really is upsetting. This was not told to me as one of the side effects. I have to go in for a check up because I’ve got swelling around my lymph nodes near my collar bone which is a symptom of leukemia. The protocol for breast cancer treatment really needs to be evaluated because they haven’t changed it in decades and clearly are keeping…[Read more]

I did because my type of cancer (lobular) has a higher chance of coming back in the other side and it’s also more difficult to detect early. So for piece of mind I chose to do both.

Well this makes me question why they are extending the length of this treatment from 5 years to 10 if most of us will become resistant. And this may have just finalized my decision to stop hormone therapy at 5 years.

This is very scary. It scared me into not messing around with this disease. My doctor told me if you don’t get your IgA antibody into normal range my chances of lymphoma rose 87%. That’s also why it’s so infuriating when companies don’t take this disease seriously and put products out that say gluten free when they are produced in facilities with…[Read more]

I have read about the arsenic from rice and rice flours. There are some rice varieties worse than others. The Mercury is a new one. Ugh. But I think it comes down to avoiding processed foods. Because gluten free processed foods tend to be higher in sugar and fat too.

Talking with a fellow BC survivor the other day because a dear friend lost her four year fight with inflammatory breast cancer on Tuesday. She said Breaks my heart. I am so sorry to hear of the loss. This disease is so crappy. It either takes you or leaves you here, incredibly damaged and a shadow of your former self. Which perfectly explains it.…[Read more]

I think they need to look into behaviors of these women. I know once diagnosed with cancer many women change many things in their life like, quiting smoking, eating organic, cutting out sugar. All these changes could be what is increasing the mortality rate. It certainly couldn’t be surgery and radiation adding longevity. Especially when radiation…[Read more]

I’m not sure but if they call the number they can ask and get screened. I had called about a sister drug to find out if it was part of the class action. I would think it would apply to anyone who had the drug. It’s just used heavily in the treatment of breast cancer.

Great news!

That is such a difficult choice. I totally understand. I’m a breast cancer survivor and suffer with the fallout from treatment daily. Being our own educated advocate is critical. How do these drugs make you more susceptible to illness like pneumonia because it’s weakening your immune response for everything right? Does the drug lower your white…[Read more]

Is their only reason to start the pharma strictly based on age or are their signs of progression of the disease?