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Eric Drew joined the group Amyloidosis Advocate Network
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Daniel Christian Patient Advocate joined the group Amyloidosis Advocate Network
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NipperCat posted an update in the group Amyloidosis Advocate Network
My brother was just diagnosed with amyloidosis after by-pass surgery and 6 weeks in ICU at the University of Michigan Hospital. Tissue samples have been sent to Mayo Clinic to determine exactly where this disease has taken hold in his body.
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NipperCat joined the group Amyloidosis Advocate Network
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Eric Drew posted an update in the group Amyloidosis Advocate Network
Just had a call form a friend of a patient with this disease who has stated that his friend is deteriorating fast. To me, this is a bone marrow disorder and it wold make sense that a BMT or cord blood stem cell transplant would be a viable cure especially if it is a potentially terminal situation.
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Ericdrew18 joined the group Amyloidosis Advocate Network
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Eric Drew joined the group Amyloidosis Advocate Network
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WeHeal created the group Amyloidosis Advocate Network