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Eric Drew posted an update in the group Burkitt Lymphoma Advocate Network
Received a call this morning form Kim who was advocating for a friend’s 9 year old son Sawyer (see https://www.facebook.com/sawyerswarriors2015/?ref=ts&fref=ts ), whose family was being told there was nothing else that could be done. Showed her how to search clinical trials to find top facilities doing research as well as specific names of doctors doing trials. Found valuable contact information for top MDs in US and Europe, and found this trial which Sawyer’s situation actually qualifies perfectly for! https://clinicaltrials.gov/ct2/show/NCT01786096?term=burkitt&rank=18. Please keep us informed Kim!
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Daniel Christian Patient Advocate joined the group Burkitt Lymphoma Advocate Network
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Denise joined the group Burkitt Lymphoma Advocate Network
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Ericdrew18 joined the group Burkitt Lymphoma Advocate Network
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Eric Drew posted an update in the group Burkitt Lymphoma Advocate Network
Received a call this morning form Kim who was advocating for a friend’s 9 year old son Sawyer (see https://www.facebook.com/sawyerswarriors2015/?ref=ts&fref=ts ), whose family was being told there was nothing else that could be done. Showed her how to search clinical trials to find top facilities doing research as well as specific names of doctors doing trials. Found valuable contact information for top MDs in US and Europe, and found this trial which Sawyer’s situation actually qualifies perfectly for! https://clinicaltrials.gov/ct2/show/NCT01786096?term=burkitt&rank=18. Please keep us informed Kim!
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Eric Drew joined the group Burkitt Lymphoma Advocate Network
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WeHeal created the group Burkitt Lymphoma Advocate Network