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Francesca posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
What’s new with us is after the surgery at Stanford to remove some of the tumor, we returned to Hawaii for a Gamma Knife radiation. When we arrived at the consultation with the surgeon, we were informed that he had taken a leave of absence, and they had imported a new radiation oncologist from Canada. Needless to say, she was NOT interested in anything other than the “standard of care”, which, in my mind, is simply nothing… and has a 10% rate of stopping the tumor.
Doing some more research, I found Dr. Christopher Duma, in Newport Beach, CA, who is using the Gamma Knife to radiate the “leading edge” of the tumor. He has a 93% rate of tumor reduction. We are heading there next week, and I will let this community know what happened.
Meantime, we are treating with all kinds of herbs and homeopathics – CBD oil, Yew tincture, etc.
Recent Activity In The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
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Eric Drew changed the name of the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network from "Glioblastoma Multiforme (GBM) Advocate Network" to "The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network"
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Hi Winnie!
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Dr.T posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
My Cousin was just Diagnosed with GBM and has had one brain surgery, and she is on a chemo and Radiation course right now. She has been to Mayo Clinic once and lives in Minnesota. Does anyone know any good oncologists in that area that could be recommended to her?
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Hello Dr. T, your timing is perfect! Right now WeHeal is arranging free treatment and trial consultations for cancer patients (especially GBM) with a team of nurse advocates, and that’s exactly the information they specialize in. ( They will research and let you know what trials are being done and who are the top oncologists / researchers in her area. This service is extremely valuable so lets get it done for your friend right away and get her to the top researchers in her area. I was also treated at the Transplant Center in Minneapolis affiliated with Mayo. It is a great area to be for advanced medicine! The request form link is located on the WeHeal home page, and please feel free to call me directly to discuss. 408-607-3739.
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Taken form the consult posted below, has your cousin had testing for MGMT promoter methylation? The MGMT status guides how and when to have the chemo temozolomide. (frequently called TMZ). Also she should probably have broad genomic testing using a test like Foundation One, if that is possible. These tests may identify specific mutations or genetic alterations that make you eligible for specific clinical trials now or in the future.
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