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Francesca posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
Latest info – we flew to Newport Beach, CA to see Dr. Christopher Duma, who agreed to use his GammaKnife as a one time radiation treatment for Tom’s tumor. When we got there, Dr. Duma told us that the tumor had grown larger, to the point where he could NOT use the GammaKnife. He had a nearby colleague, Dr. Amanda Schwer, who had a CyberKnife, and between them they would devise a new treatment plan. The following day, both doctors presented us with a plan for 5 CyberKnife treatments over the next week. Tom has had NO side effects from any of these treatments, and we are continuing his herbal treatments with the CBD oil, Yew tree tincture, etc.
Everything seems to be helping him. He is stronger, and walking around the house. Although he still has aphasia (speech impairment), we are hopeful that a spontaneous recovery will occur soon. Meantime, he is speaking in short sentences only.
We are back in Maui, working with Dr. Valerie Simonsen, ND, to keep up all the homeopathic and herbal treatments in our search for a permanent solution. Will stay in touch.
Recent Activity In The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
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Eric Drew changed the name of the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network from "Glioblastoma Multiforme (GBM) Advocate Network" to "The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network"
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Hi Winnie!
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Dr.T posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
My Cousin was just Diagnosed with GBM and has had one brain surgery, and she is on a chemo and Radiation course right now. She has been to Mayo Clinic once and lives in Minnesota. Does anyone know any good oncologists in that area that could be recommended to her?
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Hello Dr. T, your timing is perfect! Right now WeHeal is arranging free treatment and trial consultations for cancer patients (especially GBM) with a team of nurse advocates, and that’s exactly the information they specialize in. ( They will research and let you know what trials are being done and who are the top oncologists / researchers in her area. This service is extremely valuable so lets get it done for your friend right away and get her to the top researchers in her area. I was also treated at the Transplant Center in Minneapolis affiliated with Mayo. It is a great area to be for advanced medicine! The request form link is located on the WeHeal home page, and please feel free to call me directly to discuss. 408-607-3739.
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Taken form the consult posted below, has your cousin had testing for MGMT promoter methylation? The MGMT status guides how and when to have the chemo temozolomide. (frequently called TMZ). Also she should probably have broad genomic testing using a test like Foundation One, if that is possible. These tests may identify specific mutations or genetic alterations that make you eligible for specific clinical trials now or in the future.
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