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Dave S joined the group Brain Tumor Advocate Network
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Love Life Lupus Foundation Inc. joined the group Brain Tumor Advocate Network
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Eric Drew posted an update in the group Brain Tumor Advocate Network
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Nat R joined the group Brain Tumor Advocate Network
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Daniel Christian Patient Advocate joined the group Brain Tumor Advocate Network
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raineealexis joined the group Brain Tumor Advocate Network
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greycure joined the group Brain Tumor Advocate Network
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Chrissy joined the group Brain Tumor Advocate Network
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Joseph joined the group Brain Tumor Advocate Network
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Dave S posted an update in the group Brain Tumor Advocate Network
I was diagnosed with Anaplastic Oligodendroglioma 7 years ago. My tumor was removed and had the 1p/19q deletions. I had 6 rounds of BCNU chemotherapy. The tumor stayed away for 6 years and is now slowly growing. My doctor is recommending radiation without chemo, but that seems wrong to me since this is a chemo-sensitive tumor. I am planning to get a second opinion from Duke. What other hospitals would you recommend as excellent in oligodendroglioma recurrence?
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Dave S thank you for your comment and question! We work with top advocates and arrange these free lifesaving consultations that will answer all questions and educate you on all the latest treatment technologies and clinical trials, and will refer you to the top few doctors in the country dealing with your specific issue. Please go the WeHeal home page and fill out this request so I can get this started for you ASAP. That being said, Duke is a great facility, and we can help you target the top docs there right away instead of working up the ladder. Look forward to helping you find the best possible treatments!
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Eric, Thank you. I just completed the consultation request. Thank you for developing this wonderful resource for all of us!
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Thank you David! An advocate specializing in brain cancers will be in touch shortly. You should have received emails explaining the process. We are so glad to be able to help!
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David how are you doing? FYI we have new AI search technologies to assist patients in finding solutions for their diagnosis.
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Dave S joined the group Brain Tumor Advocate Network
