This is an inherited, often fatal disorder affecting the central nervous system. Krabbe disease affects about 1 in every 100,000 people in the United States. It affects muscle tone and movement, and may cause vision and hearing loss, among other devastating effects. In most cases, Krabbe disease develops in babies before 6 months of age, although it can occur in older children and in adults.
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Daniel Christian Patient Advocate joined the group Krabbe Disease Advocate Network
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Eric Drew joined the group Krabbe Disease Advocate Network
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WeHeal created the group Krabbe Disease Advocate Network