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Helene joined the group Chronic Fatigue Syndrome Advocate Network
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Bill Wolf posted an update in the group Chronic Fatigue Syndrome Advocate Network
Are there any experts in the treatment if chronic fatigue in San Jose? Or in the San Francisco Bay Area? Bill Wolf billwolf14@gmail.com 408 784 3052
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Yes Bill there definitely are! Let me look into specific names and get back to you within a couple days. I am traveling for the next couple days so I apologize about delay.
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Bill Wolf joined the group Chronic Fatigue Syndrome Advocate Network
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CSS joined the group Chronic Fatigue Syndrome Advocate Network
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tourch joined the group Celiac Disease Advocate Network
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jdonliturgy posted an update in the group Celiac Disease Advocate Network
My late-onset celiac disease is mostly under control through a gluten-free diet, but my most bothersome symptom is frequent flares of red skin rashes in patches on my neck and around my eyes. The rash is flat (no blisters) but itchy and peely and lasts several days until the next flare. Hydrocortisone cream works to make it go away, but I worry about using that around my eyes because it tends to thin the skin, which leads to wrinkles – of which I already have enough!. Other creams soothe but don’t make the rash go away. Has anybody found anything that works?
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Thanks jdonliturgy for joining us! For symptom relief, there is always systematic (oral) corticosteroids (like prednisone) or other corticosteroid creams like Emuaidmax, but the best solution would be isolate the cause of the rashes themselves. How do you know that the rashes are related to Celiac disease, especially if you have already been on a gluten free diet?
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I suspect the connection because I never had this particular rash until my celiac disease became active with gastric symptoms – and it has slowly been getting worse. These slightly scaly patches never fully go away, although the redness and itchiness responds to hydrocortisone, and they are slowly spreading. It seems to go in flares every few days. (Sometimes after I eat things made with corn.) I know I also probably get some cross-contamination as my job requires frequent restaurant and conference hotel meals where I often have to settle for “gluten-friendly”meals – and I receive a low-gluten communion host every Sunday. I met a woman with celiac disease in a group on Facebook who described the exact same symptoms, with pictures of her red-ringed peely eyes which look just like mine.
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Thanks for mentioning Emuaidmax – I may have to try it.
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jdonliturgy joined the group Celiac Disease Advocate Network
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QW joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
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Sharks41 posted an update in the group Celiac Disease Advocate Network
Hi, I am new, my 17 year old daughter has suffered from all kinds of GI issues and no energy. we finally determined she has Celiacs thru testing. shes relieved we have answers but now shes scared as well.
anyone with guidance on newly diagnosed Celiac would be helpful.
we have got an app to scan products for gluten.
I am looking forward to getting up to speed as fast as possible. thx in advance-
Hi, there is a lot to be done. Where do you live?
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I am in the bay area
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Thank you Sharks 41 for joining us, and we will do our best to provide answers and resources to help your daughter adjust to her new lifestyle. I am sure it is a relief to finally have a diagnosis to work with, and she is definitely not alone! Dr Brad West who commented above, and his wife Lauren who is a well established nutritionist and author, are a great resource!
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do u think seeing a gastro is needed right now?
sounds like the best treatment is removing gluten totally. reading about hidden gluten in everything.
got this Gluten free app for me and her to scan barcodes.-
Check out Dr. Lisa shaver in Portland Oregon who is an expert on celiac, gluten sensitivity and wheat allergies. Also Labs such as Cyrex in Phoenix and resources for how to stay gluten-free. There are many hidden exposures and problems such as cutting boards, toasters, knives, shampoo etc.. Gastroenterologist Are needed occasionally if there has not been a positive biopsy yet, especially.
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Sharks41 joined the group Celiac Disease Advocate Network
