Celiac Disease Advocate Network

  • jdonliturgy posted an update in the group Celiac Disease Advocate Network

    My late-onset celiac disease is mostly under control through a gluten-free diet, but my most bothersome symptom is frequent flares of red skin rashes in patches on my neck and around my eyes. The rash is flat (no blisters) but itchy and peely and lasts several days until the next flare. Hydrocortisone cream works to make it go away, but I worry…[Read more]

    • Eric Drew replied

      Thanks jdonliturgy for joining us! For symptom relief, there is always systematic (oral) corticosteroids (like prednisone) or other corticosteroid creams like Emuaidmax, but the best solution would be isolate the cause of the rashes themselves. How do you know that the rashes are related to Celiac disease, especially if you have already been on…[Read more]

      • jdonliturgy replied

        I suspect the connection because I never had this particular rash until my celiac disease became active with gastric symptoms – and it has slowly been getting worse. These slightly scaly patches never fully go away, although the redness and itchiness responds to hydrocortisone, and they are slowly spreading. It seems to go in flares every few…[Read more]

        • jdonliturgy replied

          Thanks for mentioning Emuaidmax – I may have to try it.

  • Sharks41 posted an update in the group Celiac Disease Advocate Network

    Hi, I am new, my 17 year old daughter has suffered from all kinds of GI issues and no energy. we finally determined she has Celiacs thru testing. shes relieved we have answers but now shes scared as well.
    anyone with guidance on newly diagnosed Celiac would be helpful.
    we have got an app to scan products for gluten.
    I am looking forward to…[Read more]

    • Brad West ND replied

      Hi, there is a lot to be done. Where do you live?

    • Eric Drew replied

      Thank you Sharks 41 for joining us, and we will do our best to provide answers and resources to help your daughter adjust to her new lifestyle. I am sure it is a relief to finally have a diagnosis to work with, and she is definitely not alone! Dr Brad West who commented above, and his wife Lauren who is a well established nutritionist and…[Read more]

      • Sharks41 replied

        do u think seeing a gastro is needed right now?
        sounds like the best treatment is removing gluten totally. reading about hidden gluten in everything.
        got this Gluten free app for me and her to scan barcodes.

        • Brad West ND replied

          Check out Dr. Lisa shaver in Portland Oregon who is an expert on celiac, gluten sensitivity and wheat allergies. Also Labs such as Cyrex in Phoenix and resources for how to stay gluten-free. There are many hidden exposures and problems such as cutting boards, toasters, knives, shampoo etc.. Gastroenterologist Are needed occasionally if there has…[Read more]

  • Brad West ND posted an update in the group Celiac Disease Advocate Network

    Yes that is exactly it!

  • Dr Brad posted an update in the group Celiac Disease Advocate Network

    Conclusions: Increased intestinal permeability after gliadin exposure occurs in all individuals. Following gliadin exposure, both patients with gluten sensitivity and those with active celiac disease demonstrate a greater increase in intestinal permeability than celiacs in disease remission. A higher concentration of IL-10 was measured in the…[Read more]

    • Eric Drew replied

      Thanks Dr. Brad! This article is pretty technical. Is Gliadin a new medication?

      • Brad West ND replied

        Gliadin is the group of gluten proteins. Think of it as synonymous with a gluten which is in barley, rye, some oats, spelt and wheat, only,

        • Eric Drew replied

          Thank you! Learn something new every day! So this article is referring to the mechanism of Gluten (Gliadin) sensitivity, that it causes excess permeability in intestines etc?

          • Brad West ND replied

            The conclusion of the study is that 100% of people tested no matter who they were had damage to their intestines with one Porten exposure.

            • Gracie007 replied

              Oh wow so basically it is actually good for everyone to go gluten free? With Whole Foods of course not the processed GF crap.

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

    Scary but important! This statement needs to be seriously considered!

    [Read more]

    • Gracie007 replied

      This is very scary. It scared me into not messing around with this disease. My doctor told me if you don’t get your IgA antibody into normal range my chances of lymphoma rose 87%. That’s also why it’s so infuriating when companies don’t take this disease seriously and put products out that say gluten free when they are produced in facilities with…[Read more]

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

    Just cannot seem to catch a break!

    [Read more]

    • Gracie007 replied

      I have read about the arsenic from rice and rice flours. There are some rice varieties worse than others. The Mercury is a new one. Ugh. But I think it comes down to avoiding processed foods. Because gluten free processed foods tend to be higher in sugar and fat too.

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

    Signs and Symptoms

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