Gracie007

  • Gracie007 posted an update in the group General Breast Cancer Advocate Network

    This was talked about on KATU news last night in how it particularly can reduce the risk of breast cancer. Interesting because it didn’t help me. Though I didn’t take it for 20 or 30 years. I was on prescription strength dose for migraines for about 5 years in my twenties. Which led to GERD And diverticulosis and I still got breast cancer 15 years…[Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    A lipoxygenase inhibitor in breast cancer
    brain metastases
    D. F. Flavin1
    (1) Foundation for Collaborative Medicine and Research, 24 Midwood Drive, Greenwich,
    CT 06831, USA
    D. F. Flavin
    Email: Dana_FK@hotmail.com
    Phone: +1-203-6610911
    Received: 23 July 2006 Accepted: 11 August 2006 Published online: 26 September 2006
    Abstract The complication of…[Read more]

    • Gracie007 replied

      What I would like to know is why patients aren’t given all the options to chose from. Why do we have to try “standard” therapy first and go through all the horrors of chemo and radiation and only then are we candidates for newer and better therapies.

  • Non Hodgkin’s Lymphoma reversal with Dichloroacetate

    Journal of Oncology
    Volume 2010 (2010), Article ID 414726, 4 pages
    Dana F. Flavin
    Klinik im Alpenpark
    Germany and
    Foundation for Collaborative Medicine and Research, Greenwich, CT

    Abstract

    A 48 year old male Non Hodgkin’s Lymphoma patient had been treated with Rituxan plus CHOP regime which…[Read more]

  • I feel duped. What the statistics really mean and something to consider now that the new standard protocol is taking Tamoxifen for 10 years.
    http://www.opposingviews.com/i/health/conditions/cancer/tamoxifen-what-difference-does-it-really-make

    • Eric Drew replied

      I am sorry Gracie! This is exactly why we so desperately need CrowdHealing! How do you feel duped? What were you told that wasnt true?

      • Gracie007 replied

        My oncologist definitely played the statistics game by saying there is a 40+% greater survival rate with taking tamoxifen etc. but what that really means is only a 1-2% difference from those that don’t. I would have never taken it for the last five years and I’m definitely not taking it for another 5. When so much is being thrown at you in a…[Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    • Gracie007 replied

      It is also misdiagnosed in many women. A dear friend just passed away from IBC. She was misdiagnosed and 2 months were wasted while the cancer spread.

  • Gracie007 posted an update in the group General Breast Cancer Advocate Network

    Leukemia risks higher in certain breast cancer chemotherapy treatments.

    https://www.medpagetoday.com/meetingcoverage/sabcs/36328

    • Eric Drew replied

      Thank you Gracie for posting this! Many of the women with leukemia that I was treated with, and who subsequently died, were ex-breast cancer patients. It was disgraceful!

  • Leukemia risk higher in certain breast cancer chemotherapy treatments.

    https://www.medpagetoday.com/meetingcoverage/sabcs/36328

    • Eric Drew replied

      Unfortunately many of the adult acute leukemia patients I was treated with when I was fighting ALL, were breast cancer “survivors” 5+ years in remission after chemotherapy for breast cancer. The data generally reflects that these women were “cured of breast cancer as they were in remission for 5 years, but then the treatment gave them acute…[Read more]

      • Gracie007 replied

        This really is upsetting. This was not told to me as one of the side effects. I have to go in for a check up because I’ve got swelling around my lymph nodes near my collar bone which is a symptom of leukemia. The protocol for breast cancer treatment really needs to be evaluated because they haven’t changed it in decades and clearly are keeping…[Read more]

        • Eric Drew replied

          If we only knew how much information was kept form us it would make you sick. This is exactly why we have created WeHeal.org and the CrowdHealing movement! To create a central transparent conversation around all treatments for all diseases!

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    • Gracie007 replied

      I did because my type of cancer (lobular) has a higher chance of coming back in the other side and it’s also more difficult to detect early. So for piece of mind I chose to do both.

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    • Gracie007 replied

      Well this makes me question why they are extending the length of this treatment from 5 years to 10 if most of us will become resistant. And this may have just finalized my decision to stop hormone therapy at 5 years.

      • Eric Drew replied

        Thank you Gracie for this post and comment! I agree that this makes no sense. Seems like they are extending this simply to collect data and learn more about the mechanisms, but what is in the best interest if the patients??

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    Important data for HER2+ breast cancer patients!

    [Read more]

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

    Scary but important! This statement needs to be seriously considered!

    [Read more]

    • Gracie007 replied

      This is very scary. It scared me into not messing around with this disease. My doctor told me if you don’t get your IgA antibody into normal range my chances of lymphoma rose 87%. That’s also why it’s so infuriating when companies don’t take this disease seriously and put products out that say gluten free when they are produced in facilities with…[Read more]

  • Eric Drew posted an update in the group Celiac Disease Advocate Network

    Just cannot seem to catch a break!

    [Read more]

    • Gracie007 replied

      I have read about the arsenic from rice and rice flours. There are some rice varieties worse than others. The Mercury is a new one. Ugh. But I think it comes down to avoiding processed foods. Because gluten free processed foods tend to be higher in sugar and fat too.

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    It crucial that patients know what they need and demand it!

    [Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    Good reason to take time and look at your options, and not jump into surgery , chemo and radiation right away

    [Read more]

    • Gracie007 replied

      I think they need to look into behaviors of these women. I know once diagnosed with cancer many women change many things in their life like, quiting smoking, eating organic, cutting out sugar. All these changes could be what is increasing the mortality rate. It certainly couldn’t be surgery and radiation adding longevity. Especially when radiation…[Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    Definitely time to re-examine the effectiveness of status-quo treatments

    [Read more]

    • Gracie007 replied

      Talking with a fellow BC survivor the other day because a dear friend lost her four year fight with inflammatory breast cancer on Tuesday. She said Breaks my heart. I am so sorry to hear of the loss. This disease is so crappy. It either takes you or leaves you here, incredibly damaged and a shadow of your former self. Which perfectly explains it.…[Read more]

  • NipperCat posted an update in the group The WeHeal Welcome Community

    Why it is important to understand the difference between Conventional and Holistic Medicine?
    See holisticonline.com for some insights about this topic.

  • NipperCat posted an update in the group The WeHeal Welcome Community

    November here in NW North Carolina has been labelled, the smoky month, due to the continuous forest fires. The smoke hovered over the Blue Ridge Mountains for days and days causing breathing and health problems. Here is some information folks may appreciate having in case they see the big flames coming their…[Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    Great info but very important to evaluate the risk vs. reward before any surgery!

    [Read more]

  • Eric Drew posted an update in the group General Breast Cancer Advocate Network

    The amazing power of vitamins!

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