-
Helene joined the group Chronic Fatigue Syndrome Advocate Network
-
Bill Wolf posted an update in the group Chronic Fatigue Syndrome Advocate Network
Are there any experts in the treatment if chronic fatigue in San Jose? Or in the San Francisco Bay Area? Bill Wolf billwolf14@gmail.com 408 784 3052
-
Yes Bill there definitely are! Let me look into specific names and get back to you within a couple days. I am traveling for the next couple days so I apologize about delay.
-
-
Bill Wolf joined the group Chronic Fatigue Syndrome Advocate Network
-
CSS joined the group Chronic Fatigue Syndrome Advocate Network
-
tourch joined the group Celiac Disease Advocate Network
-
jdonliturgy posted an update in the group Celiac Disease Advocate Network
My late-onset celiac disease is mostly under control through a gluten-free diet, but my most bothersome symptom is frequent flares of red skin rashes in patches on my neck and around my eyes. The rash is flat (no blisters) but itchy and peely and lasts several days until the next flare. Hydrocortisone cream works to make it go away, but I worry…[Read more]
-
Thanks jdonliturgy for joining us! For symptom relief, there is always systematic (oral) corticosteroids (like prednisone) or other corticosteroid creams like Emuaidmax, but the best solution would be isolate the cause of the rashes themselves. How do you know that the rashes are related to Celiac disease, especially if you have already been on…[Read more]
-
I suspect the connection because I never had this particular rash until my celiac disease became active with gastric symptoms – and it has slowly been getting worse. These slightly scaly patches never fully go away, although the redness and itchiness responds to hydrocortisone, and they are slowly spreading. It seems to go in flares every few…[Read more]
-
Thanks for mentioning Emuaidmax – I may have to try it.
-
-
-
-
jdonliturgy joined the group Celiac Disease Advocate Network
-
QW joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
-
Sharks41 posted an update in the group Celiac Disease Advocate Network
Hi, I am new, my 17 year old daughter has suffered from all kinds of GI issues and no energy. we finally determined she has Celiacs thru testing. shes relieved we have answers but now shes scared as well.
anyone with guidance on newly diagnosed Celiac would be helpful.
we have got an app to scan products for gluten.
I am looking forward to…[Read more]-
Hi, there is a lot to be done. Where do you live?
-
I am in the bay area
-
-
Thank you Sharks 41 for joining us, and we will do our best to provide answers and resources to help your daughter adjust to her new lifestyle. I am sure it is a relief to finally have a diagnosis to work with, and she is definitely not alone! Dr Brad West who commented above, and his wife Lauren who is a well established nutritionist and…[Read more]
-
do u think seeing a gastro is needed right now?
sounds like the best treatment is removing gluten totally. reading about hidden gluten in everything.
got this Gluten free app for me and her to scan barcodes.-
Check out Dr. Lisa shaver in Portland Oregon who is an expert on celiac, gluten sensitivity and wheat allergies. Also Labs such as Cyrex in Phoenix and resources for how to stay gluten-free. There are many hidden exposures and problems such as cutting boards, toasters, knives, shampoo etc.. Gastroenterologist Are needed occasionally if there has…[Read more]
-
-
-
-
Sharks41 joined the group Celiac Disease Advocate Network
-
Southerlady joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
-
Erin Jayne posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
If you click on the link it will bring up the picture from the pet scan. It’s all the black dots everywhere. The larger circles is my Brian, heart, pelvic area.
iCloudSign in to iCloud to access your photos, videos, documents, notes, contacts, a…-
Thank you for the summary and PET Scans Erin. Let me know if you filled out the ASK form with Cancer Commons and had them copy eric@weheal.org
-
Also, to initiate the free treatment search service by Aloha Health, please fill out this brief contact form here. https://contact-aloha.weheal.org/ In the questions space, you can simply cut and paste the content that you wrote below
-
-
-
Erin Jayne posted an update in the group ER+ PR+ HER2- Breast Cancer Advocate Network
I have been diagnosed on 10.8.19 with stage 4 metastatic breast cancer, which has also spread throughout my entire body. I go to standford for all doctors appointments. I found these lumps myself on 9.18.19 on my neck and I contacted STANFORD myself, went through biopsy they tested 10 lymph nodes. They gave me this news below on Tuesday.
My…[Read more]
-
Erin your story absolutely brings me to tears, as I have been there myself and know how difficult it is to bear such news, and I can say that everything I was told and probably everything you were told was not true. This is THEIR opinion, not YOUR reality! You can choose your own reality and your own destiny just as I did, and I am here to help…[Read more]
-
-
Erin Jayne joined the group ER+ PR+ HER2- Breast Cancer Advocate Network
-
Eric Drew posted an update in the group General Breast Cancer Advocate Network
Onions and garlic may protect against breast cancerThe first population-based study of its kind examines the association between onion and garlic consumption and breast cancer risk. -
Eric Drew posted an update in the group General Breast Cancer Advocate Network
For all Breast Cancer Patients regardless of the state of their treatment, There are two entities I recommend you get consultations from as soon as possible. Staying on top of your options and planning now so you know exactly what you need to do if you relapse (hopefully not), you will save yourself precious time and be able to move right away…[Read more]
-
Gracie007 posted an update in the group General Breast Cancer Advocate Network
Imperative legislation for those with metastatic disease. Please call your representatives to get this past.
Metastatic Breast Cancer Access to Care Act | HR 2178/S…-
Thank you Gracie! Getting these benefits early will definitely be a bonus for women who are newly diagnosed and need resources to arrange the best possible treatment. It should be immediate! My cancer (ALL) can kill people within days weeks or a few months, yet they made me wait 6 months before benefits would kick in. Didn’t seem right!
-
-
Gracie007 posted an update in the group General Breast Cancer Advocate Network
Not sure that I feel encouraged or not by this.
Why Aren’t Cancer Drugs Better? The Targets Might Be Wrong – The New York TimesDrugs can stop cancer cells if they attack the r…-
Thank you Gracie as always for posting these very important articles. Its sad that the US system is so corrupted as so much energy is spent on profitability as opposed to what is best for the patients!
-
Posted on both Facebook pages!
-
Both facebook pages? Weheal has two pages now?
-
Actually always did. We have had the Eric Drew Foundation page for a long time. When the WeHeal name came on board, we launched another one for WeHeal.org so people would find something under both names. Trying to manage social media has been quite a confusing challenge.
-
-
-
-
-
Gracie007 posted an update in the group General Breast Cancer Advocate Network
More evidence that HRT therapy increases breast cancer risk and breast cancer mortality.
-
Gracie007 posted an update in the group General Breast Cancer Advocate Network
This is very promising. Could help minimize over treatment for younger women diagnosed. Instead of let’s throw everything at them but the kitchen sink let’s actually tailor by individual.
Highly sensitive blood test could improve breast cancer treatment | Cancer Research UK<… - Load More
