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Joseph joined the group Brain Tumor Advocate Network
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Dave S posted an update in the group Brain Tumor Advocate Network
I was diagnosed with Anaplastic Oligodendroglioma 7 years ago. My tumor was removed and had the 1p/19q deletions. I had 6 rounds of BCNU chemotherapy. The tumor stayed away for 6 years and is now slowly growing. My doctor is recommending radiation without chemo, but that seems wrong to me since this is a chemo-sensitive tumor. I am planning…[Read more]
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Dave S thank you for your comment and question! We work with top advocates and arrange these free lifesaving consultations that will answer all questions and educate you on all the latest treatment technologies and clinical trials, and will refer you to the top few doctors in the country dealing with your specific issue. Please go the WeHeal…[Read more]
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Eric, Thank you. I just completed the consultation request. Thank you for developing this wonderful resource for all of us!
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Thank you David! An advocate specializing in brain cancers will be in touch shortly. You should have received emails explaining the process. We are so glad to be able to help!
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David how are you doing? FYI we have new AI search technologies to assist patients in finding solutions for their diagnosis.
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Hi Winnie!
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Dave S joined the group Brain Tumor Advocate Network
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Eric Drew posted an update in the group Brain Tumor Advocate Network
Patient plays saxophone while surgeons remove brain tumorMusic is not only a major part of Dan Fabbio’s life, as a music teacher it is his livelihood. -
Dr.T posted an update in the group The Marcus Bannon Glioblastoma Multiforme (GBM) Global Advocate Network
My Cousin was just Diagnosed with GBM and has had one brain surgery, and she is on a chemo and Radiation course right now. She has been to Mayo Clinic once and lives in Minnesota. Does anyone know any good oncologists in that area that could be recommended to her?
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Hello Dr. T, your timing is perfect! Right now WeHeal is arranging free treatment and trial consultations for cancer patients (especially GBM) with a team of nurse advocates, and that’s exactly the information they specialize in. ( They will research and let you know what trials are being done and who are the top oncologists / researchers in her…[Read more]
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Taken form the consult posted below, has your cousin had testing for MGMT promoter methylation? The MGMT status guides how and when to have the chemo temozolomide. (frequently called TMZ). Also she should probably have broad genomic testing using a test like Foundation One, if that is possible. These tests may identify specific mutations or…[Read more]
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